A specialized team. A tailored approach.

In rare disease research, a pre-fabricated approach won’t do. Each study requires tailored attention to ensure the right questions are asked, and the right team is in place to provide the right answers.
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Rise to the challenge

Your work brings hope to the families of more than 350 million people living with one of 7,000 rare diseases. With so few approved treatments, you can make a real difference.

But you face immense challenges in finding dispersed patients, identifying meaningful endpoints, creating novel study designs, and executing everything flawlessly.

Backed by the exceptional approach and resources of IQVIA, the leading Human Data Science Company™, our unified team of experts is ready to help.

Operational models tailored to the needs of patients and the study. Local patient support: Home health nurses, local testing facilities, referring physician. Types of sites: Established networks & treatment centers, Key opinion leaders (KOLs), IQVIA rare disease magnet site network, local physicians. Key Study enablers: IP and Lab logistics, centralized monitoring, on-site monitoring, study dashboard
IQVIA's Experience

321 studies

in rare disease in 87 countries worldwide since 2014

Access the latest in human science and data science to accelerate results

IQVIA puts unparalleled data, actionable insights, advanced technology, and deep therapeutic expertise to work in solutions that will accelerate results for rare diseases. By tapping into these integrated capabilities, you can

  • Speed recruitment: Quickly and confidently identify the right early-stage patients with IQVIA's proprietary algorithms and real world data
  • Reduce costs: Tap into rare disease magnet sites and IQVIA's relationships with appropriate medical centers worldwide
  • Collaborate with experts: Benefit from experts who've been there, and delivered; our experts can provide counsel on needs from complex study and protocol designs, to regulatory approval and reimbursement market access
  • Improve commercial decisions: IQVIA's advanced analytics, including machine learning and predictive analytics capabilities, help you generate new insights from your data
  • See the impact of new innovations and treatments: Be ahead of the curve in planning for and executing on regenerative medicines, cell and gene therapies, and a new generation of biosimilars
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Real World Data and Insights

Learn more about the federated evidence networks and massive, non-identified global databases that inform our real world solutions.

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